Information updates

February 28 is Rare Disease Day

28 February 2018: 

In 2018 the theme for Rare Disease Day is research. Research brings hope to the millions of people living with a rare disease across the world and their families.  It is critically important to identify treatments and cures. A rare disease is defined as one that affects 1 in 2000 of the population. Although rare diseases vary widely, patients and families can share many common struggles. 

Vasculitis disorders are autoimmune diseases that result from inflammation of blood vessels, and are classified as rare.  You can support research into vasculitis and other rare autoimmune disorders at   ASCIA has updated information on vasculitis at

Primary immunodeficiencies are relatively rare disorders involving a defect in the normal function of the immune system. Delayed recognition and diagnosis leads to poor health outcomes and potentially premature death. You can support research into primary immunodeficiencies at  The ASCIA website includes recently updated information on primary immunodeficiencies at including new resources to support subcutaneous immunoglobulin (SCIg) therapy.


Content updated 28 February 2018