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Immune Diseases

Primary Immune Deficiency (PID) diseases

It is our intention to significantly expand the information for health professionals on Primary Immune Deficiency (PID) diseases in 2014-2016.

In 2014 ASCIA has initated the following 5 projects in this area:

ASCIA Subcutaneous Immunoglobulin (SCIg) Project

The main objective of this project has been to develop the ASCIA SCIg Position Statement which is now available on the ASCIA website:

www.allergy.org.au/health-professionals/papers

This project is supported by unrestricted educational grants from CSL Behring, Octapharma and Baxter.

ASCIA Transplantation and PID (TAPID) Project

The main objectives of this project are to:

(1) Establish regular collaboration and discussion between major centres transplanting patients with PIDs in Australasia.

(2) Develop unified recommendations for optimal pre-transplant management of PID in Australasia.

This project is supported by an unrestricted educational grant from CSL Behring.

ASCIA Immune Deficiencies (ID) Register

The main objectives of this project are to:

(1) Collect data on all patients with primary immune deficiency diseases in Australia and New Zealand.

(2) Enhance research, therapies and advocacy for primary and secondary immune deficiencies.

This project is supported by unrestricted educational grants from CSL Behring and Octapharma.

ASCIA PID e-training for health professionals

The main objectives of this project are to:

(1) Increase awareness and knowledge of PID amongst health professionals, including GPs and immunology nurses.

(2) Promote early recognition and referral to a Clinical Immunologist.

(3) Improve management of patients with PID in Australia and New Zealand.

This project will be supported by an unrestricted educational grant from CSL Behring.

ASCIA PID Health Professional Information Paper

This will be based on the content of the ASCIA PID e-training course for health professionals, with the same objectives.

Note: All documents that are developed as a result of these projects will be available for review by the ASCIA Immunodeficiency committee and the ASCIA membership, before they are finalised.

Asia Pacific Immunoglobulins in Immunology Expert Group (APIIEG) Consensus Recommendations for the Use of Immunoglobulin Replacement Therapy in Immune Deficiency  

www.apiieg.org/STATEMENTS.ASP 

Patient information on immune deficiency diseases 

This is available at Immune deficiencies

Content updated August 2014

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